Time To Clean Things Up A Bit

3/25/19

Summer 1993

On my cancer journey, we had many ups and downs; one being a heart problem I began having when I was small. I remember playing one day when I was super little, and all of a sudden my chest hurt. I went to my mom and told her, and she felt my chest and said my heart was beating really fast. We rushed to the doctor.

I have always been on the lower end of the growth chart, and I was pretty small when I was little. Back in the day when I started walking, my mom bought a baby doll that had hard soled shoes so I would have shoes to wear. When my heart started racing like that, my chest moved with the beats. At three, it was very unnerving, and when we arrived at the doctor’s office, they moved very quickly to get me stabilized.

My rapid heartbeat was called SVT or Supraventricular Tachycardia. In my terminology, the heart would get triggered and beat right around 300 times a minute. The doctors and nurses had me do many different things. We began with coughing, and then pretend like I was having a bowel movement, because the “bearing down” maneuver stops or slows the rapid heartbeat. When that did not work, they had an ice bucket, and they told me to put my face in it because the heart will slow down when someone is submerged in cold water. The last thing, if the previous actions do not slow the heart down, is a fast-acting medication that blocks the electrical impulses causing the heart to race. All of these treatments are done very quickly, because a body cannot sustain a rapid heartbeat for very long before there are major problems, like cardiac arrest. We were told we had a fifteen-minute window to get it under control.

For some reason, I remember having the medicine that first time we went in because the other treatments were not working. My memory may be wrong, because this was the beginning of dozens of episodes that I dealt with in my childhood and teen years. I would say 95% of them were treated by me. The first few we went into the doctor, and then I got to the point where as soon as it occurred I would cough, bare down, jump up and down, and then my personal go-to treatment was a cartwheel. Yep, that is right! All of those actions were done fairly quickly, but if I was playing with my brother, and the SVT set in, I did those actions in that order. I would mention to him that my heart was racing, and then off to the races-cough, bare down a few times, jump up and down, cartwheel. It worked almost every time, and then a few breaths and back to climbing trees.

Almost forty years have passed since my first episode, so these were the only treatments. As we entered the cancer world, I had just turned 13 and was still working through my same SVT treatments, with no new medical treatments out there. I would be hanging out with friends, playing volleyball, or even jumping on a trampoline, and there goes Rachelle doing a cartwheel. Absolutely random! But it had become my life, and that is just what I did. Cancer changed this self-treatment and “turned it upside down on its head.” Once I began chemotherapy, I had absolutely no control over stopping the rapid beats. We rushed to the hospital multiple times to receive the last resort treatment; the medicine that stopped the heart and then the heart would go back to a normal rhythm. The cancer surgery was severe, with an incision all the way down my stomach, and the chemotherapy blocked a healthy healing process. The final treatment for my irregular heartbeat was open heart surgery to repair that defected electric pathway that causes the signal to go in a circle instead of straight. Open heart surgery was absolutely not an option for me on chemotherapy, but it was the only option right then. At one of the heart episodes, my mom had begged the doctors not to do surgery; there was no way I would survive it.

I mentioned in a previous post, that we were at a chemotherapy treatment, when I lost it. I was done with the heart problem, I was done with the chemotherapy, and I was done with all of it. After my blood work that day, the doctors said counts were good, and we were going ahead with the chemo. I said I did not care if I died, tried to leave, and my mom stopped me. After we calmed down, we headed to the cardiologist appointment that was scheduled for that day. He came in, and we talked about the next step. What would we do now? He said there had been new medical treatments for SVT. One was a catheter ablation that goes into the groin and neck and burns the defected electrical pathway. The other treatment was a pill that was proven to lessen the amount of episodes of rapid heartbeats. We were very much ready to try the medicine, and if that did not work, the doctor would do the ablation. The medicine proved to be a life-saver, for real.

The medicine did its job and lasted through chemotherapy treatments and for the next couple of years. I stayed fairly healthy through the summer and 11th grade and kept up with my schoolwork and softball. It was determined at an appointment in my junior year, we would do the catheter ablation to correct the defect. This was in the early 90’s, and when you read about SVT treatments these were the medical advancements in this disease that were being introduced. I just happen to be going through what I was going through at the same time. The ablation was extremely new, so there were no long-term results to go off of, but we had been through so many years of this disease that we felt positive this was the direction to go.

Right after my seventeenth birthday, we went into the hospital again to have the ablation. I would be admitted for a week so they could monitor the heart and its response to the minute change in structure. I was pretty apprehensive because the last time I went into surgery, wow, did I wake up different. This time I actually was not put under but sedated. Now, that was crazy, because they “burned” the irregular pathway, and I remember clearly the sensation; I woke up slightly at that moment. A week later, I was good as new and 25 years later, my heart is still strong. Now, I have a normal heart with a skipped beat now and then, which sometimes makes me anxious because that was usually the same sensation that sent me into SVT.

I am so grateful for the Lord’s timing, direction, and leading my parents to make the decisions they felt were right for me and the problems that came my way. My parents asked for the doctors to wait on the open-heart surgery because there was no real deadly threat, and I would struggle with survival from another surgery. The Lord brought medicines in our world when I was at the bottom. And He gave us a non-invasive ablation that has proven to work for quite a few years now. What an awesome God! At this point in my cancer journey, decisions were still being made to further a healthy life. We were “cleaning up” some of the things that were put on hold for so many years.

God asks us to do the same in our spiritual lives. He directs us and leads us in the paths we should go, but we need to stay close to Him to see those paths. As Christians, each and every day we must confess our sins, the bad things that we do. We are human, we are sinners saved by grace, but our sin keeps us from God’s leading. I John 1:9, “If we confess our sins, he is faithful and just to forgive us our sins, and to cleanse us from all unrighteousness.” This is so important, so needed, and so much required to see our path clearly.